Wednesday, January 29, 2014

Abandonment

Hey Buddy,

Yesterday was a day to remember.  To keep safe in my heart for many years to come.  Yesterday a community of people came together to remember, honour, pay respect to two beautiful, tiny souls.  Souls that weren't given a chance at life.  Souls that were left to die... alone, in the dark, in the cold, with no one to cuddle them, no one to love them as children deserve to be loved.  Yesterday I stood respectfully before their tiny, white coffins.  Those coffins.  Many memories of my last moments with you....  a coffin should not be that small.  It's cruel.  Unfair.  And far from okay.  I stood there and the tears came.  The lump formed...  as I imagined these precious lives being so unnecessarily cut short.  Imaging their helplessness ... and the helplessness these mothers felt.  Praying that the media coverage the service was getting will somehow, someway break through a barrier of society that doesn't seem to want to touch these subjects.  Hoping that "the powers that be" will find compassion for these lost souls... for the parents that are scared or sick...  Wishing that there will be something put into place to help.  To give these parents an option.  An option over abandonment.  An option over death.

I felt my body physically ache and become weak with grief as those sweet baby boys were carried out of the funeral home.  I had to remind myself to breathe... to steady myself as my heart broke all over again.  We followed the hearse to their grave.  A peaceful, delicate spot carved in the garden of the cemetery...  The temperature was beyond cold (-30) and the wind whipped the snow around us.  It was bitter... yet fitting.  I could endure a few minutes of dreadful cold to say goodbye to these boys.  To give them the dignity and respect they did not get in life.  To love them and comfort them on the last leg of their journey....  because they deserve it.  Because we cared.

Friday, January 24, 2014

"I Mention Him"

Exactly, buddy.... never far from my thoughts.... always in my heart

I Mention Him

I Mention Him

 
Not to make you uncomfortable,
He's my son, I should be able to talk about him.

Not to dwell,
He will forever be my son, part of my life, my heart.

Not to make you feel guilty,
He is a child just like your own, but he's in Heaven.

Not to bring you down,
It brings me joy to speak of him fondly.

Not to get attention,
He exists in my life just as your topics of conversation exists in yours.

Not to gain sympathy,
Believe you me, I wish I did not have to speak on him the past tense.

Not to bring you down,
My grief is lifelong, my healing is in the only life he has now, his mommy.

Not to rub it in your face,
I would never wish this on ANYONE!

Not to make it about me,
I am just another parent trying to speak of my kids the way you do yours.

Not to suck you into my world,
Your world is just as important to me.

Not to distract you,
I want to hear how your life is going, your happiness is relevant.

Not to take away from the conversation,
Yet life as well as death is a part of common conversation.

Not to make my life seem more important than yours,
I am my own person in my own journey and I share what is in my heart just as you do.

Not to remind you of your own grief,
We all walk our own paths and stumble as all humans do, we should pick each other up.

Not to garner your support,
Everyone gives whatever they can to enrich the lives of the ones they care for.

Not to remind you,
No one needs to be reminded of the loss of a child.

Not to haunt you,
It sucks, it truly does but not speaking of him haunts those who love him.



He is my son, I mention him, his life, his passing, and the times since then because I live every one of those moments in real time everyday.  He is a part of my being.  He is a part of my soul.  He has a place in my heart.  I carried him in my womb.  I watched him struggle.  I made the hardest decision a parent will EVER have to make...I let him go.  But understand, though I let him go physically, spiritually, mentally, and emotionally, he will ALWAYS be with me!  I am thankful for it, it's all I have and at this point, it is all I need.  
 

Tuesday, January 14, 2014

Thinking...

I think about you so much.  I think about how much you have enriched my life... how much strength I am able to present, because of you.  I think about our connection and the connection I have been honoured to make with others...  I dream about your tiny, little spirit and just how big it truly is.  My heart is healing and I am relieved to say that I feel at peace.  I

On your 5th birthday we visited a small hospital in Ottawa.  I presented 6 Comfort Boxes to an audience of 8 nurses, doctors, caregivers....  6 Comfort Boxes in your name and in your honour.  Your legacy continues, buddy.

On that very day, just as we were posing for a group photo I spotted a ladybug....  a beautiful, perfect ladybug silently perched on a luscious plant inside of the hospital.  My heart was stunned at the timing... it was also filled with joy and warmth as I realized that your spirit was there.. with your family, far from home... offering your energy and your light to an emotional day.

Beautiful things do happen.

Love your sweet soul, buddy...

Thank you from the bottom of my heart.

Wednesday, November 6, 2013

November 6 and 7, 2013 - You have given us so much.....





Originally posted - March 2009

The days leading up to Nicholas' birth were so surreal. I'm convinced that I was in complete shock... and in complete despair. I often wish that I consciously connected with him more during those last few days. Instead, I felt shame. Not ashamed of my sweet baby boy, never that, but ashamed of myself. Ashamed that I had let this horrible thing happen to my baby. Ashamed that my body couldn't keep him safe. I changed in the dark. I wore the absolute baggiest clothes I could find and I physically cringed when my husband would touch my belly. I disconnected because that is what felt safe for me at the time. I didn't want to bond any more than I already had with this baby for fear of completely breaking down. I now know that was the stupidest thing I could have done... our bond was already as strong as strong could be and I wasted precious time.


Secretly I cherished the kicks, the nudges, the hiccups and the bubbles those last few days, but never again did I say "Oh my gosh, watch my belly, he's rocking and rolling again". It's very difficult to put into words why.... I think all of you know the feeling. Complete helplessness. Deep and utter sadness. Those days were so incredibly hard. I couldn't understand why he was so active and seemingly okay when the opposite was true - he would not have that "life" when he wasn't connected to me. It truly is amazing what we do for our babies... how we nourish them, grow them.. and love them so.

It's funny, everyone always seemed to ask how I was sleeping, if at all. I never had any problem sleeping. I was so completely and totally drained that closing my eyes and falling asleep was a relief. My problem was waking up. It literally hurt to wake up... to reality. Every day we would wait for the phone call from the doctor to say that the ethics committee had met and made their decision. Every day I held my breath as the phone rang and rang and rang. I was very angry at the fact that an "Ethics Committee" held the fate of our family and our precious baby at their mercy.

We finally got the call and went into the hospital on Thursday, November 6, 2008. We got to the clinic early and there only a few people walking the halls. I was in autopilot... I remember one pregnant lady sitting across from us. She had seen my bag and pillow and commented on the fact that we were going to have our baby that day.... little did she know.

I have never, ever cried so much or felt such immense pain as I did when I felt our sweet baby boy go...

I was given something to relax me and then the induction began. It seemed to take forever. I was feverish and nauseous from the gel the doctors were giving me every few hours. I was given an epidural where I could manage the dose... I remember forcing myself or my husband to press that button... I wanted to feel this labour. I wanted to work for my Nicholas. This was the last thing we were going to do together... and I wanted to remember every (although painful) minute.

Fast forward to the next day... Friday, November 7, 2008. My body seems to have shut down. I am not dialating, I am not contracting. I can't even do this right.
Then suddenly I feel the tremendous urge to push. He's ready. I'm not. I'm not ready to push him out of me. I'm not ready to let go.

I remember these young, inexperienced (in bedside manner anyway) interns coming in to assist with Nicholas' birth. They were anything but gentle. Not that I cared, really. I didn't care about anything at that point, except for holding my beautiful boy in my arms. I'll never forget the feeling of him slipping out... slipping away. I howled.... just howled. It was over and I was lost. I couldn't keep him safe any longer.

He is just beautiful. The first thing my husband and I noticed was his red hair. Our first born has red hair and Nicholas was the spitting image of him. He smelled so clean and fresh. His skin was so smooth and perfect. His lips so red and kissable. I couldn't get enough of him and yet I felt myself detaching.... shock has a funny way of protecting was needs to be protected. I thank God for shock. It allowed us to savour the precious time we had with our son. To love him. To caress him. To just "be" for at least a few hours before we had to say goodbye.

Goodbye. What an impossible thing to do.

to be continued...

Monday, October 28, 2013

October 28, 2008

October 28, 2008 - The Beginning of the End


October 28, 2008

The day our world stopped. The day we were told that part of our baby boy's brain had not formed. The day we had to make the most unimaginable decision of our lives.

We were scheduled into the high risk pregnancy hospital that afternoon for a number of tests because an ultrasound had shown that the ventricles in our baby's head were larger than normal. My husband and I made the 1/2 hour drive into Toronto and, to be honest, our spirits were hopeful. We certainly had a million questions, but how bad could it be right? I was 33 weeks and had several ultrasounds throughout the pregnancy - every single one was "fine" - until the last one. How could something so catastrophic not been seen earlier??

When we got to the clinic I had blood taken, then we had the amnio... and then the "detailed ultrasound" performed by one of the head doctors. He studied our baby for a long, long time (all the while making small talk). I remember him telling us about his daughter and a big house they had bought not too far from where we lived...I look back now and wonder how in the world he could talk so casually when he could clearly see the trouble our baby was in.

The doctor was called away for what felt like hours and during that time my husband and I tried to remain calm... we didn't know anything for sure at this point. My husband looked at the transcript from the previous ultrasound and figured things were fairly positive (he has some training in the medical field and can read the jargon). When the doctor finally returned he probed my belly again and asked if he and the doctor we had been seeing (who was now in the room) could speak with each other freely. Sure. I didn't understand a single thing they were saying, but something deep in my soul knew that none of it was good. I kept looking at my husband for some kind of reassurance.... nothing. He just kept shaking his head and looking really concerned. When my husband looks concerned I know there's trouble.

The doctors finished up and we were sent to wait in the waiting room... for what we now know was the worst news of our life.

We were taken into the genetic councilor's office and shut the door. Oh God...

"Part of the baby's brain has not formed at all" the words went through me like a sword. "There was some kind of insult to the baby", probably during or after my emergency surgery at 20 weeks, "There is a high chance that the baby will not make it through labour or for very long once he is born" .... my vision is blurry now, I am staring blankly at who knows what, I don't hear them anymore. "If the baby is born alive we cannot guarantee what quality of life he will have... with half the brain missing...." "Everyone has different views and ideas of what quality of life is....there are options for you." Options, are you serious??!!!

After a while we were left alone in that office.... to scream, to sob, to shake uncontrollably. Our first and foremost thought was that we did not want our precious baby boy to suffer. We did not want him to be born gasping for breath, struggling to stay alive. We did not want him on life support and we did not want our beautiful boy to be attached to tubes and needles. We also felt like we had to think about our two boys at home... there were 5 people to think about. I will never forget my husband saying that. I don't remember too much, but that I remember. It struck a chord and resonated in my breaking heart.

The decision to let him go, without a doubt, was the most heart-wrenching, soul-searing, horrendous decision we have had to ever, ever had to make, but I truly believe we made it out of love. I have to believe that we spared him the pain, the suffering that he would have inevitably endured, regardless of the outcome.

I pleaded with the doctors not to send me home that night.... I really didn't know how to face anyone. But there are policies, of course. We were sent home to writhe in our pain... to start grieving our little boy who was still actively kicking and pushing his mommy's belly.

We waited 4 days to get an MRI scheduled. The MRI was to 110% confirm the findings (which we were all for).

That was Friday, October 31, 2008 - Halloween Day. And that is for another post.

My heart and soul ache for you Nicholas..... we love you more every day... xo

Thursday, October 24, 2013

Today

Every year around this time I struggle.  The tears flow without warning.  There is a dull ache in my chest and my breaths are a little harder to take.  The vulnerability I feel at this time is painstaking.  Unstoppable.  Agonizing.

I try my very hardest to honour you, sweet Nicholas.  To keep your beautiful legacy alive in this world.  I try to give back to others hurting as we do.  I do it in your name.  I do it because you gave me clarity to what I could give back in this life.  You were taken away.  I am still here.  My resolve is to parent you through comforting others.  To allow my love for you honour other babies gone too soon.  To offer support and strength to their families.  To remember you with purity and passion.

But the anniversaries come with pain and sorrow.  The subconscious memories blindside me and I am left to pick up the pieces.  The rest of the year is dedicated to honouring your beautiful little life.... but today, little man, mommy is struggling. 

I love you. 

I am so sorry.


Tuesday, October 22, 2013

Nicholas' 5th Angel Day




October 22, 2013



Dear Family and Friends,                                               


Nicholas’ Birth/Angel day is Thursday, Novemeber 7th.  It will have been 5 whole years since Jim and I had the incredible opportunity to meet our third son, face to tiny, perfect face.  Five years since we were blessed to hold him in our arms… smell him… kiss him….talk to him… love him.  

I am struggling with 5 years.  Every year is a milestone, but 5 seems truly unimaginable.  When Nicholas died I remember genuinely wondering how the world could continue to spin… how the stars still shone… how the birds still sang…  Our world was drastically halted in that moment and it seemed beyond unfair and cruel that time didn’t stop.

Flash forward to today.  

I couldn’t be more grateful for time.  

Time to dull the intense pain.  

Time to begin to heal our broken hearts. 

 Time to try to forgive myself.  

Time to remember and honour Nicholas.  

Time to realize how much love he has brought to our lives.

Most of you will remember that we have been marking Nicholas’ Angel Day with a special and unique event each year.  Together, with an amazing support system, we have created life long memories on what is an extremely emotional day for our family.

This year we will be travelling to Ottawa on November 7th.  To be honest, I have had a hard time accepting this truth, however, we have come up with a plan to continue our tradition of honouring Nicholas’ memory on his birth/angel day.

I have been busy putting together more Comfort Boxes.  We will donate 6 of them to a hospital close to where we are staying in Ottawa.  We are more than comforted to know that some families may find some much needed solace from the items we have provided.  

I am saddened by the fact that we will not have the opportunity to again share this day with an abundance of friends, family and supporters.  However, I am encouraged to know that we will be surrounded by our “hockey family” as we navigate our way through this latest anniversary. 
In the past, the events have changed, as it will this year, but the meaning will always be there.  It is so important to us to have a positive focus on what could be a terrible day re-living horrific memories.    
Nicholas’ legacy lives on and that is what it is all about.

We continue to heal our broken hearts by remembering and honouring our special little guy every day.   We do this together, with love, perseverance and with the boundless support of amazing family and friends who have been there for us every step of the way.   We thank you all.

With Love and Gratitude,
Leanna, Jim ,Evan, Kyle, Madison and Angel Baby Nicholas Reeves

“I would rather have had one breath of his hair, one kiss of his mouth,
one touch of his hand, than an eternity without it…”